Welcome

Beckwith-Wiedemann Syndrome is an overgrowth related disorder that manifests itself in many ways. Within this site, you will find information about characteristics associated with the disorder and be able to view photos of defined features that often manifest themselves in those affected by BWS. Information about the BWS REGISTRY TEAM, latest research efforts, conferences, clinics and links to other sites of interest are also contained within. Our Mission The Beckwith-Wiedemann Children's Foundation is a non-profit organization dedicated to increasing the quality of life for those affected by this rare, 1:14,000 birth disorder. There are many ways that you can join us in making a difference for these individuals and we welcome all who are interested.                            Sincerely,                                The Board of Directors

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